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Amplifying the lived experience of people affected by cancer

 

WHO launches phase 2 of “Strengthening the voice of people affected by cancer”

Have you or your loved one ever been diagnosed with cancer?

Have you had a loved one who has died from cancer?

We want and need to learn from your experience.

During their lifetime, 1 in 5 people are diagnosed with cancer. Nearly every family around the world is affected by cancer, either directly or as caregivers of someone who has had cancer.

We need to learn more about the emotional and practical needs of people affected by cancer, to offer better support.

WHO's "Global survey on the lived experience of people affected by cancer" was designed in collaboration with those affected by cancer.

We invite people with a lived cancer experience as well as their family members or caregivers, including partners, parents, children, siblings, to share their experience from around the world. The survey focuses on the social, emotional and financial impacts of cancer

Survey results will help develop programmes to improve the well-being of people diagnosed with cancer, their families, and caregivers.

As someone affected by cancer, your voice can change how care is provided around the globe.

 

1 in 5 people

are diagnosed

with cancer during their lifetime

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In 4 out of 5

countries

cancer was one of the leading health concerns

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Understanding the Global Survey on the Lived Experience of People affected by cancer

What happens next

Reflecting WHO’s long-term commitment to placing people affected by cancer at the centre of policy and programme design, the survey findings will now be carefully analysed and translated into action to strengthen people-centred cancer care worldwide:

  • Inform the development of programmes and services to improve the well-being of people diagnosed with cancer
  • Strengthen support for families and caregivers
  • Ensure that the voices of people affected by cancer shape cancer care and policy at global, regional, and national levels

    WHO sincerely thanks everyone who shared their experience and contributed to this global effort.

    Thank you for ensuring that people affected by cancer are heard and placed at the centre of action!!

    If you have any questions about this program of work, please contact the survey team at cancer@WHO.org and [email protected].

Lived experience photo exhibition

Hear from persons affected by cancer on their experiences with cancer care, treatment, survivorship and advocacy.

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